United States Department of Veterans Affairs
United States Department of Veterans Affairs

vietnam era twin registry

Acknowledgements


The United States Department of Veterans Affairs has provided financial support for the development and continuation of the VET Registry. The authors acknowledge the work of the following people: 1) Vietnam Era Twin Registry: Programmer, K. Bukowski (Past); 2) VET Registry Advisory Committee: A.G. Bearn, M.D. (Past), E. Boerwinkle, Ph.D., G. Chase, Sc.D. (Past), T. Colton, Sc.D., J. Dorman, Ph.D., W.E. Nance, M.D., Ph.D., R.S. Paffenbarger, Jr., M.D., Dr.P.H. (Past), M.M. Weissman, Ph.D. (Past), and R.R. Williams, M.D. (Past); 3) VA Chief Research & Development Officer: John R. Feussner, M.D., M.P.H.; Assistant Director: Steven M. Berkowitz, Ph.D.; Program Manager: Joseph Gough, M.A.; 4) the many research investigators who have helped expand the VET Registry database.

The following organizations provided invaluable support in the conduct of this study: Department of Defense; National Personnel Records Center, National Archives ad Records Administration; the Internal Revenue Service; National Opinion Research Center; National Research Council, National Academy of Sciences; the Institute for Survey Research, Temple University.

Most importantly, the authors gratefully acknowledge the continued cooperation and participation of the members of the Vietnam Era Twin Registry and their families. Without their contribution this research would not have been possible.

A number of systems have been implemented to manage the VET Registry. These systems include a set of databases that are secure and allow ready identification of twin participation in current and previous research projects. A newsletter is used to stay in regular contact with twin pairs and provide feedback to the twins. An Advisory Committee of senior scientists provides oversight to the Registry and conducts an external review of all new projects. Human subject protections are in place that strictly limit access to twins and require projects to use approved 3rd party contractors to serve as intermediaries between the investigators and twin pairs.

The VET Registry is actively pursuing several new directions for the future. As the twins age it is likely that new projects will be initiated that focus on the common physical health problems of older age. The Registry is seeking projects studying chronic diseases such as hypertension, diabetes, heart disease, and arthritis.